Very shortly after satisfying my curiosity with Multiple Sclerosis alternative remedies (which consumed valuable
energies grasping at straws), I consciously decided not to give MS
any more than what it was going to take and refrained from spending my time thinking about it ... until now.
Having now lived the course of 22 years diagnosed with Multiple Sclerosis - Secondary Progressive, I have gained character attributes and mental clarity which is now adequate to assist others on their journey.
How you think about your disability IS critical. Strive to extend your communication faculties to the greatest extent possible.
Skills you have above able bodied individuals, show them off ...
(society will be all the better for it
(provide a much needed wake up call)) ... for yourself as well
November 6, 2016 . as life is in essence the discovery of self, I feel our existence is an existence in consciousness which has been ordained in nature and it IS for us to come to an understanding of these natural forces, revealing the scars from the physical plane and how they manifested in your psyche ... so as not to repeat. To one's own self be true ... true to self IS a necessity.
November 8, 2016 . when your first diagnosed you are actually told MS IS an autoimmune disease (the Truth) and in the ensuing chaos you fail to understand, and believe it's a deficit in something physical outside of your being (the Program). This results in a conscious break manifesting in denial of what is in reality true. Close relationships are veiled in belief that they need your protection and results in failure to deliberate considerably, which IS where the causal factors actually are. Personal ownership IS required to obtain insight.
To be able to come to see whom you have become, as accurately as possible ... HINT: you are known by Your Works.
... my MS diagnosis is now 22 Years in the past.
Since the spring of 2013, I have been busy working on improving my environment and memory. I have managed to turn-the-tables on multiple sclerosis through creative pursuits with persistence (firm or obstinate continuance in a course of action in spite of difficulty or opposition).
The Divine Comedy by Dante, Illustrated by Dante Alighieri
There is no greater sorrow than to recall happiness in times of misery. Dante Alighieri
actually ... the greatest sorrow a heart can bear is that of a woman's loss of a child. All other sorrows pale significantly in comparison.
The Compassionate Friends:
Providing Grief Support After the Death of a Child
"The Compassionate Friends is about transforming the pain of grief into the elixir of hope. It takes people out of the isolation society imposes on the bereaved and lets them express their grief naturally. With the shedding of tears, healing comes. And the newly bereaved get to see people who have survived and are learning to live and love again."
You Are Not Alone
When your child has died, suddenly it seems like all meaning has been drained from your life. When you wake in the morning, it’s difficult to get out of bed, much less live a “normal” life. All that was right with the world now seems wrong and you’re wondering when, or if, you’ll ever feel better.
I was born November 17th, 1951 in Saskatchewan, Canada.
When I was 44, in 1995, I was experiencing strange difficulties with my gait +.
So I went to a Neurologist and had a Myelogram (a very bad idea) which gave a diagnosis of Multiple Sclerosis, Secondary Progressive, September 8, 1995. An MRI sometime later confirmed the diagnosis.
At the time, I was living in Richmond, British Columbia with my wife and two young children. I was working 3 12hr shifts per week, 8pm - 8am Friday / Saturday / Sunday as a Senior Computer Operator at the University of British Columbia, Computing Center. My first day was December 8th, 1980 ... the day Beatles star John Lennon was shot down in New York.
Beatles - While My Guitar Gently Weeps
In those early years, I worked 5 8 hour rotational shifts per week between days / evenings / nights. It was always very busy and great fun. As my wife worked days, I swapped my dayshifts for evenings if possible ... else nights, and looked after our children in my off time ... we played school.
They learned the alphabet, numbers / mathematics and some higher forms of symbolic reasoning. I took them swimming three times a week and skating twice. Chess interested them watching me play in 2001 at 12, so I taught them how to play on an electronic gameboard.
By the early 90's, technological advances had transformed the work into not much more than a babysitting job and shifts were re-organized to accommodate a 3 day 12 hour position. I knew the weekend shift would be available as nobody would be wanting it. It suited me fine for managing my failing health ... going into work only 3 days a week instead of 5, was the prime motivator.
During the summer of 1995, I took my children on a vacation to visit Grandpa in Saskatchewan
(I wanted to have them experience the prairie while they were still young .
you can take the boy out of the country, but you can't take the country out of the boy).
We visited my grandparents homesteads and paid respects to our elders.
I had difficulty with the cactus embedded pasture.
On our return, we stopped in Calgary to visit my sister as well as the Calgary Stampede. Leaving the Stampede Grounds for the parking lot, I could walk no further than 10 feet before needing to rest a short while.
I was in great shape, 5'7" 180 lbs and strong. I was at a loss as to what the problem was ... perhaps a pinched nerve I thought. I was learning springboard diving at UBC's pool ... 2 3 and 5 meter height ... I must have pinched a nerve. So when the Neurologist suggested a Myelogram, great, my difficulties would be discovered. Having this examination caused severe trauma.
The evening of the Myelogram was an ordeal. I needed to keep an ice pack on my head continually. Shortly after midnight, three bolts (shocks) entered dead center of the crown of my skull
C R A C K C R A C K C R A C K
They flashed down the inside core of my spine and out my tailbone.
I had no idea what was happening and pondered what I was dealing with.
I imagined being commandeered to do battle against a Horrendous Beast called Multiple Sclerosis. My life was about to be turned upside down and shaken ... for years and years. I resolved to do the best I can in confronting this challenge and got back to work after 3 days rest. I spent the next few years looking for a way out and back to health with supplements, etc. etc. ad nauseum to escape the grip of MS.
May 26, 1996, my balance was so bad, I could not responsibly perform my duties and resigned to long-term disability. Over the next 10 years, my children grew to teenagers while my condition progressed (deteriorated) from needing a Cane to Walker to Scooter to Wheelchair. I was at the end in 2005 when I was having such difficulty the stress was too great on our marriage and we separated with a great deal of anxiety (unfortunately).
With Coastal Health Home Care Support, I remained living at home with my children until the spring of 2007, when I ended up in the Emergency Room of Richmond General Hospital. Dr. T, my General doctor at the time, advised me that I was not likely going to be able to continue living on my own any longer. I was dismayed.
September 6, 2007 I moved into Minoru Extended Care facility in Richmond, British Columbia while my children rented a place on their own... that was very hard to do... options did not present themselves.
I lived there for 15 fifteen months until December 4, 2008 when I had the good fortune to move into care at Residences for Independent Living Society (RILS) in Steveston, Richmond, B.C.
British Columbia Mobility Opportunities Society (BCMOS)
is an independent non-profit society dedicated to enriching the lives of people with physical disabilities through wilderness recreation.
BCMOS was founded in 1985 to make it possible for people with physical disabilities to access B.C.'s great outdoors. We operate hiking, flight, kayaking and paddleboard programs.
Since 1995, the centerpiece of BCMOS's programs has been the TrailRider, a specially designed wilderness access vehicle. With one wheel, and "sherpas" back and front, the TrailRider can tackle any terrain.
In May 2016 we will be opening a paddling centre in Vancouver, on False Creek near Science World. From there we will offer accessible paddleboard and kayak opportunities.
We are also opening a new program offering flight.
So thats adventures by land, sea and air!
Cultus Lake BCMOS Hike June 25, 2016
Going into the MS Clinic: it was difficult to even look at the more advanced people
(it was way too close to home (Scary)).
Now, I am one, and can, as I should, provide material which will assist others in replacing challenges with
incredibly awsome opportunities for a bright future full of adventure and intrigue.
We create our own possibilities.
My advice to anyone facing challenging life circumstance ...
Shortly after receiving an MS diagnosis, Dr. Jack Kevorkian came on TV and assisted a young man with MS to
I had already become familiar with what the clinical pamphlets foretold of your future: blindness, paralysis, mute and impotent, incontinence etc., etc. (thoughts very fearful to an able bodied person).
Watching Dr. Kevorkian end this man's life, the main thought I came away with was:
September 5, 2016 I feel the likelihood that Fear ! was a prime motivating factor for him is very high.
this young man was probably literally scared to death
(how unfortunate if so).
As for me, when the time comes to leave, I'm going to laugh the heartiest laugh possible and exclaim Bravo !
Jacob "Jack" Kevorkian May 26, 1928 â€“ June 3, 2011) was an American pathologist, euthanasia activist, painter, author, composer, and instrumentalist.
He is best known for publicly championing a terminal patient's right to die via physician-assisted suicide; he claimed to have assisted at least 130 patients to that end.
He was often portrayed in the media with the name of "Dr. Death"; however, many consider him a hero, as he helped set the platform for reform.
He famously said, "Dying is not a crime".
In 1999, Kevorkian was arrested and tried for his direct role in a case of voluntary euthanasia.
He was convicted of second-degree murder and served eight years of a 10-to-25-year prison sentence.
He was released on parole on June 1, 2007, on condition he would not offer advice nor participate nor be present in the act of any type of suicide involving euthanasia to any other person; as well as neither promote nor talk about the procedure of assisted suicide.
As an oil painter and a jazz musician, Kevorkian marketed limited quantities of his visual and musical artwork to the public.
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Where wealth like fruit on precipices grew.
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